As our children with disabilities get older, so do the problems. Lately I have been wondering to myself, when do these issues stop, do they ever stop? I don’t think there is a therapist or psychiatrist that can answer this question. When we work through one area of problems. we take a deep breath and give that sigh of relief. But is it really over????
As many of you know my daughter will officially start her first year of college this Fall. She is going to a college that deals with her disability, it’s small and everyone knows each other. As she was home this summer we enlisted the Bureau of Rehabilitative Services to help her find a job that fit her disability. This was good, they found her a retail job for 50 hours to see how she would do. This is not what I would have picked but this is their job. She started the job was there every day on time and left on time. We were so proud of her. She did tell us it was not her favorite job but it was a job. On the second to last day of her job, she called me early. I thought this was odd, so I called. I asked her what she was doing home, her reply to me was ” I screwed up Mom!”. She was in tears, crying on the phone. “What did you do?” Her reply to me was “I stole something and they caught me”. Okay so this is a parents WORST nightmare. Okay what happened. Luckily because she was in a disability program, they were not prosecuting, the manager who was working with her and the theft dept took her in a room made her acknowledge what she had taken, and let her go home. Of course my husband and I have to go to BRS for a meeting with her. She did not get paid and we sat her down to explain that she was very lucky because the police could have been called in and she could have been arrested. Okay, so when does it end!!!! As a parent of a disabled child, we first called her therapist and got a family appointment, then the psychiatrist and got his appointment. Okay she made a mistake, hundreds of kids do it, but with my daughter she doesn’t know why or she just doesn’t want to tell us. We tried to tell her that we are concerned with sending her to college because her decision making is concerning. She ranted and ranted about how she was sorry and needed school. We put this on the back burner until we went to the therapist.
Going to the therapist was a good outlet for my husband and I, for my daughter it was another story. She got very defensive and would not talk positively. The therapist realized there was an issue and we devised a plan. She would go to her twice a week to widdle out how she felt and why she did it, of course she could not talk in front on my husband and I, then we would have her tested to see if there was some underlying issues. Once we did this then we would discuss college, I can still cancel.
The psychiatrist was the difficult part, he talked to my daughter alone, and then with my husband. He thought that testing would not show anything but that she needed a specialist and we would have to come back the next week so he could contact a few people. Okay no resolution, not my favorite way to end things. So my husband, daughter and I had a conversation, she feels the psychiatrist isn’t doing anything. Really, this is about you, (my daughter) you have to figure out what’s going on in your mind. I told her let’s clean the slate, let’s start by making new rules, cleaning up her appearance, clearing and cleaning her room, getting rid of the old and starting fresh and then it will lead to where she wants to go. Boy did this hit a nerve!!!! You would think I was the Grinch who stole Christmas. Needless to say this is where we ended.
Now, I know that many of you, parents, are saying I have done so much to help, where do I go, what do I do? Hmmm, my daughter is 18 years old. There isn’t very much I can do without her authorization. I have advocated for my children their entire lives and now do I give up. I sit and think that I’m beaten down, tried and am banging my head against a brick wall. Where do I go what do I do? I pray that God will give me a direction, because evidently this direction has not been correct. Parts of me want to run away, hide and forget. Parts of me say let her go, let her figure it out, but is that real, can she even function without us.
So as I sit writing this blog, I’m still puzzled in what to do. Do I risk loosing my daughter, have I lost my daughter, does she look at me as the villain taking everything away from her. I honestly don’t know the answer, maybe “by the grace of God”, I’ll have the answer the next time I blog. I really don’t know. But I do know that being a parent is very difficult, it’s something we all dream about our entire lives, well, at least I did, I know it’s difficult, but I never thought that I would be embroiled in such difficult decisions, the chance of losing a child’s relationship, and hopefully not losing her love. I hope I can find an answer.